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Submitted: 14 Aug 2020
Accepted: 03 Nov 2020
ePublished: 20 Nov 2020
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J Renal Inj Prev. 2022;11(3): e23773.
doi: 10.34172/jrip.2022.23773
  Abstract View: 269
  PDF Download: 123

Original

Kidney transplantation registry program in Mashhad university of medical sciences; design and rationale

Maryam Miri 1 ORCID logo, Masoumeh Akbari 2, Narges Ghoreishi 1, Khalil Kimiafar 3 ORCID logo, Maryam Hami 1* ORCID logo

1 Kidney Transplantation Complications Research Center, Mashhad University of Medical Sciences, Mashhad, Iran
2 Department of Medical Informatics, Mashhad University of Medical Sciences, Mashhad, Iran
3 Department of Medical Records and Health Information Technology, School of Paramedical Sciences, Mashhad University of Medical Sciences, Mashhad, Iran
*Corresponding Author: Corresponding author: Maryam Hami, Email: hamim@mums.ac.ir, , Email: hamimaryam@gmail.com

Abstract

Introduction: Kidney transplantation was conducted in Mashhad University of Medical Sciences (MUMS) for more than 20 years. In recent years, about 160 kidney transplantation has been conducted here annually, that consisted of both cadaveric and living donor programs.

Objectives: Since transplant outcomes have not been systematically monitored, we try by registration of this group of patients, donors and recipients, to analyze and share kidney transplantation outcomes.

Patients and Methods: The kidney transplant registry program in Mashhad, Khorasan Razavi, started in 2016. This registry is a prospective, single center, longitudinal program, designed as a dynamic observational cohort that enrolls all transplant recipients and donors. Demographic data, etiology of chronic kidney disease and patient and graft survival were analyzed.

Results: Baseline characteristics, treatment data, patient and donor condition before and after surgery, potential clinical events including hospitalization, co-morbidities and graft failure are all collected. Follow-up visits in recipients have been conducted in 1st, 3rd months and every year after operation. Data quality is ensured by automatic software validation and a manual data review process.

Conclusion: By this system, it is easy to adhere to input. Likewise data is adequate for rapid statistical processing.


Implication for health policy/practice/research/medical education:

Kidney transplantation registry program has been provided in Mashhad University of Medical Sciences for systematically monitoring of recipients and donors in renal transplantation. We try to analyze and share kidney transplantation outcome through registration of this group of patients in our center.

Please cite this paper as: Miri M, Akbari M, Ghoreishi N, Kimiafar K, Hami M. Kidney transplantation registry program in Mashhad university of medical sciences; design and rationale. J Renal Inj Prev. 2022; 11(3): e23773. doi: 10.34172/jrip.2022.23773.

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